Monday, March 21, 2011

Survivor....Cystinosis

Name: Tahnie
Location: Utah, USA

"I'm a survivor because my parents were told I would not live past 9 years old due to an incredibly rare genetic disease, Cystinosis. Furthermore, I am a survivor because there are only a few other women in the world with my illness who have been able to have children. In this photo, I'm basking in the miracle that is my daughter and soaking up the magic her existence holds." - Tahnie

3 comments:

  1. awesome story. super cute pic! plus the two of you have gorgeous hair. :)

    ReplyDelete
  2. Love Tahnie & her story.. amazing!!

    ReplyDelete
  3. James' mommyJuly 3, 2011 at 10:08 PM

    My son has cystinosis...so happy to see you are doing well!!!

    ReplyDelete

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